HELP OUR CAUSE

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PATIENT ADVOCATE EXPERIENCE

Supporting the Psoriasis Community

With years of patient advocate experience, I understand the importance of educating you on the most effective ways to take care of your body. My vision is to be a leader in improving quality and helping reduce the cost of health care for patients in the communities in Washington, DC, Waldorf, MD, and around the globe. 

 

  • My Journey: I have had psoriasis for over 50 years and psoriatic arthritis for the past 35 years. In the last 15 years, I have considered myself an expert by experience only. 
  • Doctors & Medications: Chronic illness  has taught me how to live and how to manage my condition. I have learned to stay on top of medications and go to the doctor when necessary. Over the years I have had to have several different procedures at treatment centers in Washington, DC, and I have learned how to take better care of myself.
  • Community Involvement: I have been taking medication since the age of five. Being around drugs my whole life was a driving influence to become a full-time patient  advocate for 20 years or so, I consider myself a driving force in my community, around Waldorf, MD and in Washington, DC. I try to attend as many seminars and conferences as I can, to learn all I can from others.

 

Supporting the Psoriasis Community

With years of patient advocate experience, I understand the importance of educating you on the most effective ways to take care of your body. My vision is to be a leader in improving quality and helping reduce the cost of health care for patients in the communities in Washington, DC, Waldorf, MD, and around the globe. 

 

  • My Journey: I have had psoriasis for over 50 years and psoriatic arthritis for the past 35 years. In the last 15 years, I have considered myself an expert by experience only. 
  • Doctors & Medications: Chronic illness  has taught me how to live and how to manage my condition. I have learned to stay on top of medications and go to the doctor when necessary. Over the years I have had to have several different procedures at treatment centers in Washington, DC, and I have learned how to take better care of myself.
  • Community Involvement: I have been taking medication since the age of five. Being around drugs my whole life was a driving influence to become a full-time patient  advocate for 20 years or so, I consider myself a driving force in my community, around Waldorf, MD and in Washington, DC. I try to attend as many seminars and conferences as I can, to learn all I can from others.

Sharing My Opinions With the Medical Community in Washington and Waldorf

When I explain to some doctors that I have patient advocate experience, some become leery of me. But then I explain that I have spoken in front of 200 doctors at the Dermatology Association and spoke at the FDA; then, their heads begin to turn. They have questions to ask me. There is still so much they don’t get about our disease.

I believe that open learning is endless. The one thing that sticks in my mind is that most people are happy to meet someone like them. Not everyone understands what we go through. I am so humbled when someone thanks me for being such a great advocate for them.  I feel so inspired that I can help others.

It’s the best feeling ever when a doctor asks my opinion on something. I feel empowered. Not all doctors feel this way. They have their medical degrees, so it seems they think of us as patients who can’t tell them anything.

I know we don’t have medical degrees, but I have learned so much over the years. I can apply my experience to the life that I live now. We are just as knowledgeable about what is going on within our bodies.

I know we don’t have medical degrees, but I have learned so much over the years. I can apply my experience to the life that I live now. We are just as knowledgeable about what is going on within our bodies.

WHAT IS A PATIENT ADVOCATE?

As an advocate, there are many things I do for the psoriasis community:  

 

  • Attend events at Capitol Hill  
  • Have fundraising events, walks, conferences and seminars 
  • I’m also on a patient advisory group, run a blog, and I’m social media sites

ADVOCACY: RUNNING A MARATHON FOR SUPPORT

In this article, you’ll learn about how living with psoriasis has been a wild ride. You’ll find out: 

 

  • What I’ve learned as a patient advocate for psoriasis 
  • How to take the high road in life while living with a chronic disease 
  • Ways to maintain a course to power through the difficult moments

ADVOCACY RESOURCES

Find more great resources to inform you along your journey: 

 

  • Real events in your community 
  • Podcast episodes about living with psoriasis 
  • Other great websites that deal with this disease

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