I have learned over the years that talking about psoriasis is an essential way to deal with our disease. I was diagnosed with severe psoriasis at the age of 5. I have lived with this most of my life. As many as you know; skin diseases always cause a little fear and tension. We have to give so many countless explanations to our friends, family and colleagues are inevitable.
Dealing with psoriasis is difficult, it has brought on a lot of unpleasant and embarrassing moments for me as well as others I know. This increases the level of stress, a notorious accelerator of flare-ups. And then we all go on this loop called a flare up.
For a long time, I had the feeling that I could never find a reliable source when looking for information. I know how hard it is to find a person that has the relevant knowledge and the empathy to understand how dealing with psoriasis feels. My own experience with both the physical and emotional part of living with this disease has developed in me an urge to help others as much as I can. I have made this my life journey.
This is what I like about KOPA and this is why I joined this wonderful community. I looked around this site for a minute. This community website was filled with information, services, and support for people with psoriasis and psoriatic arthritis. I notice they were concerned with creating solutions and helping people. They were concerned about us getting a better understanding of the physical and psychological symptoms associated with having this illness. They care about how important it is to feel more comfortable in your own skin.
What could be more important than learning about the condition you live in every day? Although I have lived with psoriasis for over 50 years and psoriatic arthritis for over 30 years; I still to this day find out things that I never knew. I have recently been interested in understanding more about the immune response to stress and how it worsens the symptoms of psoriasis.
Unfortunately, anxiety and stress often go in hand with this disease and the worst thing about it is that I’ve felt them not only emotionally but also physically. These mental conditions float onto the surface in the form of irritations, scales, pain, swelling, flare-ups, and itching. However, I don’t fully understand the mechanisms of how this triggers work.
Luckily, there are many wonderful people on KOPA that are more than happy to explain every question I have in an understandably and unselfishly way. This helped me to see anxiety from a different perspective and to understand why it happens to me in a simple and rational way.
Knowing how to explain my condition around me is very important not only in terms of my own health but also in spreading awareness to people in my community as well. Telling others about many different aspects of psoriasis is an amazing way to spread awareness to a large percentage of people who don’t have psoriasis. Talking to one person about psoriasis and engaging fully in the conversation is a powerful step towards helping the psoriasis community.
If you want to find support and community empowerment, connect with others who have psoriasis. I truly enjoy the instant relationship I have with those who understand the challenges of living with psoriasis. Finding that the community is still taking efforts and initiative to make our everyday life feel a bit better is life-changing, gives so much hope for the future and makes me feel nothing but grateful.
KOPA has provided us with that social support that we need. With everything that is going on I know for myself that being here at KOPA has minimized my stress level. Having a group of people together has made all of us feel less stress.
Before joining this community, I was watching the news all day and being depressed. I didn’t want to talk to anyone and didn’t want to see anyone right now. I sit around all day, ate and gained weight. I found myself crying at times because it just seems like I had too much to deal with.
We all need to find a place where we feel like we belong and can unite with others. Being in a community such as KOPA made me feel I was part of something that was greater than myself. I have met some wonderful people who have the same goals as I do. I also feel like what I say here, stays here. I feel safe, secure and don’t feel judged by anyone.
We have all found a sense of community at KOPA. They are based on strong relationships and make sure that we are a group of people that grow both excellence and excellent relationships with each other. We have great leaders that help us thrive and have a clear vision on where they want to go.
Without you, there is no community. KOPA has created something where we can be together and share our life knowledge. Sometimes it can be the smallest things that make the biggest impact. I loved that KOPA has found great talent in the small people. You don’t need a million likes, or thousands of followers to be part of this great group of people. So many of us have experience, or a great knowledge of our diseases.
We all need that outlet to vent every now and then. I have found that outlet. I can go to this community morning, noon and night. Someone will respond to me. There are days I just want to shout and get it out. KOPA understands and they get it. There are so many well-informed people there with a wealth of knowledge. They even have a doctor on board if you need any medical advice.
Living with psoriasis and psoriatic arthritis can be very challenging. You don’t have to do it alone. Get involved with the KOPA psoriasis community. I have talked to people who have gone from being sad to happy. You would be surprised at the number of people that don’t know about psoriasis communities. Won’t you come join us today?