HELP OUR CAUSE

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IT’S ALL IN YOUR HEAD

“Nobody understood my pain, except me.”

Go take an aspirin. A doctor said this to me once. I had pain and still do. My doctors didn’t believe me.  Different types of pain:    

 

  • Acute pain that starts suddenly and feels sharp 
  • Chronic pain lasts for a long time. 
  • Breakthrough pain is a sudden pain. 
  • Bone pain 
  • Soft tissue pain 
  • Nerve pain 
  • Referred pain 
  • Phantom pain 

I WANT TO HELP THOSE WITH CHRONIC PAIN BY RAISING AWARENESS

Pain is real. I want to help those with chronic pain by raising awareness and by educating.

Learn what advocates do to help people suffering from psoriasis and PsA.  

 

  • Organizations working to help 
  • Pain warriors by your side 
  • Educating yourself about pain management

Do you know what makes a good patient advocate for your community?

Why do people in pain seek the help of a good patient advocate?  

 

  • Wealth of knowledge 
  • Wide network of support systems 
  • Get help from someone who has had similar experiences

HoW do you know if you are a Spoonie? what are the signs?

Find out about what this term means, and see if it could apply to you in your condition.

 

  • Do you have to take a lot of medication?
  • Do you experience pain in multiple parts of your body?
  • Ways to take care of yourself

Why Do We Have To Demand To Be Helped?

When you have chronic pain, you need to help. Here are some of my experiences:  

 

  • Not understood by family 
  • Juggling several doctors 
  • Finding someone to listen to you about your pain

Mental Limitations That Can Effect You

How does this disease limit your mental capabilities?

 

 

  • Staying in bed with pain 
  • Overwhelming emotions 
  • Inability to focus on projects 
  • Daily challenges 

When Being in Pain Is a Pain

What causes the pain and irritation that accompanies psoriasis? 

 

 

  • Characteristics of psoriasis 
  • What we know about how this disease works 
  • Recognize the pain and find a way to cope