Advice from Diane

DEMANDING HELP WITH PSORIASIS

 When you have chronic pain, you need to help. Here are some of my experiences:

 

  • Not understood by family
  • Juggling several doctors
  • Finding someone to listen to you about your pain

Advice From Patient Advocate Diane Talbert

WHY DO WE HAVE TO DEMAND TO BE HELPED?

My Experience Demanding Help for Psoriasis

 

I remember being younger and just couldn’t figure out was was wrong with me, all I did was cry and I always felt anxious. My family and friends never understood what I was going though with my health. 

Some People Don’t Know How to Help With Psoriasis

If one more persons says to me that I don’t look sick; I am going to scream. Years ago a co-worker said, “Well, it can’t be that bad, you come to work.” The one thing that always comes back to me is that doctor saying, it must be in your head.

Fighting My Pain From Psoriasis and Helping Others Who Want to Be Heard

I have psoriasis, psoriatic arthritis and fibromyalgia. I see a dermatologist, rheumatologist, and pain management doctor. Between the three of them, I am diagnosed to have nerve and muscle pain, insomnia, anxiety, fatigue, stiffness, swelling, aching, burning, stinging, plus a few more symptoms. 

I don’t want to learn to live with my pain and just accept it. Here are some quick tips and my experiences raising awareness in my social circle:

 

  • We need to voice how we feel. 
  • I have spoken to so many people that want to be heard. We have to fight our disease, our doctors, insurance companies and whoever else. 
  • It’s sad that we have to fight so hard to get the help that we need from people who are supposed to help us anyway. 

 

Finding Ways to Cope With Psoriatic Arthritis Pain

 

  • Get plenty of rest.  
  • At the end of each night, try to remember all the things or activities that you were able to do throughout the day, despite being in pain and being fatigued. 
  • You can also keep a diary that can serve as a reminder of how strong you were during your worse days. 
  • Be proud you made it another day. 
  • Try to relax as much as possible through medication, abdominal breathing,  a warm bath, reading or any other relaxing activity or small ritual. 

 

Mentally Overcoming Psoriatic Arthritis Pain

 

  • Imagine your dream and visualize your goals of the person you want to be. 
  • Create a new image in which you are victorious, dominant and strong. 
  • Believe you are more powerful than anything that currently occupies or disturbs you. 
  • Try to find encouraging quotes to help you cope with anxiety, pain, or fatigue. Have them with you as a mantra or reminder..

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