Finding Support Through Advocacy

WHAT IS AN ADVOCATE?

 As an advocate, there are many things I do for the psoriasis community: 

 

  • Attend events at Capitol Hill 
  • Have fundraising events, walks, conferences and seminars
  • I’m also on a patient advisory group, run a blog, and I’m social media sites

WHAT IS A PATIENT ADVOCATE FOR PSORIASIS?

Find help with psoriasis, PsA, and other symptoms by working closely with a qualified patient advoca

I’m very active in my community. I have met many people in my walk of life. I attend town hall meetings in Washington and Waldorf. I visit nursing homes and hospitals. My church family allows me the opportunity to visit places that would not be on my daily radar.

My advocacy work stretches beyond my having psoriasis and psoriatic arthritis my whole life. I tell my story to whoever will listen to me. I fight for insurance issues, disability and harassment; especially on the job. 

We are all advocates in some sort of way. 

“You meet people all the time and when you are empowered to empower someone else it makes all the difference in the world.”

I think we should speak out on how our elderly are treated in nursing homes, hospitals or even jails. Is it fair they can’t afford medical care? This is a situation that a lot of us don’t think about. These are the type of things that make advocacy efforts very important to me.

To me being a good advocate is just helping your elderly neighbor who doesn’t drive. You can call the bus station or train station to find out schedules and are they handicap accessible and their schedules.

If you have a issue in your community, you can call your city official for help. Or you could talk to a patient advocate for support. 

 

  • I like helping people find support groups that understand what it’s like to have psoriasis and psoriatic arthritis. 
  • I help people find health care and have their questions answered. 
  • I like volunteering to help someone who is newly diagnosed. 

 

I find great pleasure in advocating for someone else. I feel empowered and I get to work with so many powerful advocates in my circle. I am part of a community group, which means we advocate together to find results. 

As an advocate, there are many things I do for the psoriasis community: 

 

  • Attend events at Capitol Hill 
  • Have fundraising events, walks, conferences and seminars
  • I am also on a patient advisory group, run a blog, and I’m social media sites

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